When I pray sometimes I focus on how much pain I’m in and only that. We need to remember to praise God and thank Him for the things that He has done and things we have. I am grateful that God connected me with caring doctors, medicine, a roof, and I’m surrounded by people who love and care for me
As I ponder your goodness
I’m compelled to lift praises.
I cast aside my woes and
I remember your goodness.
As I sweep aside my pain
I celebrate and worship.
My despair is silenced as
I sing thanksgiving.
Praise Father, Son, and Holy Ghost
for their wonderful goodness.
I learned today a comeback to our downer thoughts. Its like a springboard. When you have a negative thought strike back with saying something positive. Hearing the positivity allows us to think, say, and hear. Its a powerful comeback. Positive and uplifting messages are empowering and helps us focus on the good things. Makes us think about subjects like pain management, healthy self-esteem, the people who helps us along the way, and the Lord.
- Thoughts about being surrounded or trapped by the pain. Say “I’m surrounded by Jesus.” “I will be rescued” “I am surrounded by people who love me.”
- Thoughts about being weak. Say “My God is my strength” or “I am strong and courageous because I have hope in the Lord”
- I can’t do this. Say “I can do this. God directs my path.” or “the Lord is my author and my finisher”
- I’ll never get better. Say “the Lord will heal me” or “God is with the doctors” “New medicines are being discovered all the time.” or “I put my hope in the Lord.”
- Its to much emotionally. Say, “A peaceful heart leads to a healthy body” or “God’s got this.” or “I put my trust in Him” or “The Lord will fill me with joy.”
Sometimes we need help.
We are social beings. Our brains are hardwired to need people. We need family, friends, clergy, and loved ones. We need people in our lives that can build us up and people who can lift our spirits.
We also need to distance ourselves from toxic people. These people tell us lies about our illnesses, the people who care about us, and about our character. Toxic people tare us down and make us feel sad, lonely, unloved, and like we are burdens to the people we loves. These are all lies.
The people who love us do not see us as burdens. We are loved. We are strong. We inspire people. We build people up. We teach others about perseverance. We are doing the best we can. We are people doing something extraordinary. We function while suffering, we are doing the impossible. The people who love us see an exceptional person.
Sometimes we need help. We need to reach out to those who support us. Our family, friends, loved ones, support groups, and others going through what you are. And sometimes we need to reach out to psychologists, talk therapy, the E.R. The E.R. will admit you to the psychiatric ward and that’s OK. If you are psychotic, very depressed, or having suicidal thoughts it is where you need to be. Personal care is important. Part of that is reaching out for help from whomever you feel/think will give you the bests help or advice.
Sometimes you need help and that is normal. It’s okay. Take care of yourself.
What does your ribbon look like? We usually see it crafted into a butterfly or given some type of bling. I thought about how the ribbon is more then an awareness object. When we look at the ribbon we think of our loss, struggles, pain, and brokenness. But we also get a sense of togetherness, courage, and strength. It turns a survivor into a warrior. The most important thing about the awareness ribbon is that it is a symbol of hope.
Hope. Romans 8:24-25
“24 For in this hope (of everlasting life) we were saved. But hope that is seen is no hope at all. Who hopes for what they already have? 25 But if we hope for what we do not yet have, we wait for it patiently.”
I cannot hope to be healed if I’m already healed. I can’t hope for a cure if we have one. I can’t hope to be without pain if I am pain free. Hope inspires people. Seeing hope in others is inspiring. We wouldn’t have any epileptic medicine if hope hadn’t inspired someone. Once we have a cure to epilepsy and migraines, we will hope for an affordable cure. We need hope. To keep hope alive we need patience. We learn patience and we can encourage each other to never give up.
Why did I draw it that way? I am a Christian.
I believe that I should take all my worries and pains to Christ, as the saying goes “take it to the cross.” That is why I started the ribbon faded and torn on the right. I believe Christ will take everything and make it new again. That is why as the ribbon falls to the front of the cross the color changes to just lavender and then ends is a smooth cut. The ribbon is not tied like the traditional ribbon so that it could blow away, Christ is capable of healing-illness and brokenness disappears. All things are possible through Him.
Topic: What’s in your “#Migraine or #Headache cave?”
My bedroom in my cave. Making a even this corner of the house me-friendly is hard. From the best heating pad to kind of black out curtains, it is lot of trial and error got us to where we are now.
- Ceiling light is an incandescent 50 watt bulb. It is getting hard to find those things.
- Lamp 20 watt incandescent and closet a 40 watt incandescent.
- Floor length brown black out curtains.
- Medium purple walls (white walls add brightness and a medium blue made the room a little too dark with the lights off and to bright with the lights on around dusk. I usually don’t turn on lights until its dark outside)
- Drawers next to my bed: medicine, tissues, heat pad doll, color books, drawing/coloring stuff, mp3 player/speaker/headphones, and things I use every day.
- Table with computer and drinks
- Hanging off my bed frame: noise cancelling headphones, crotch project bag, and a sweater.
- End of my bed, extra blankets/pillows, and Chewbecca/teddy bears.
- Trash bin and power outlet next to my bed
- An aloe plant to purify the air
- TV with Netflix, Dramafever, Pandora, and Youtube apps downloaded. (I have the brightness turned down to almost the darkest setting)
- chair with foot stool
- I keep most of the materials I need for my pain management projects in my close
- And Karma’s toys line my doorway, that is where Karma thinks they belong
MHAM Day 10 Topic: How does your pet help you manage #Migraine or #Headache?
This is Karma. She loves walks, sitting on the porch, digging, treats, and being petted. Sometimes she gets hyper focused on one family member. Usually that family member is not doing well physically or emotionally. Karma will stay by their side, guard their doorway, and put her head or paw on their leg. Sometimes she talks to them. And she mopes. Ask her “Do you need?” and she will stare at the person or the person’s room.
She tends to know where I am all the time. “Karma, where is Crystal” or “Karma, find Crystal.” She will run back and forth between me and the person looking for me until Karma is satisfied the person found me. Sometimes Karma says “hey come see Crystal.” There was a day I fell and could not get up I was so dizzy. Karma lay down and stared at me for over an hour not moving. Karma herd the car pull up, ran to the front door, and started barking. I herd the door open then Karma’s paws sprinting down the hallway. She paused in the doorway. Mom had not gotten the hint. She sprinted off. She came and went two more times. The third time she barked at Mom. Then Mom came and the “Crap Crystal is sick” routine commenced. Since then we taught Karma everyone’s name who lives in the house.
Other phrases Karma learned was “Name, doesn’t feel good” and “Go to, name.” Both phrases result in Karma finding the person and giving them loving or begging for attention. Having Karma to pet is soothing. I don’t know what it is about simply running my hand through her fur. Another thing is I can match her breaths to get into my breathing exercises if the pain is so bad I’m having trouble. She can be a confidant. I can tell Karma anything and know she will not treat me differently. “Karma it hurts to much.” She will still ask me to throw her rope and give her treats. Another funny thing Karma does is smile when she is petted (I read that is backwards, dogs usually smile to get petted). It’s feels the same as making someone smile. A little positive emotion boost when the pain is a killer is nice.
For more blogger’s posts about this topic go to (http://www.migraine.ninja/2017/06/10-pets-can-sense-and-comfort-during-a-migraine-or-headache.htm) and look down in the comments.
I started feeling non-stop pain in March of 2005. A few months ago I had an altercation with some light monsters. At my doctor’s appoint last month we decided that an episode of extreme light sensitivity should be avoided. The pain doctor prescribed me Naproxen. He explains to take it as needed for when it gets bad but no more than 2 pills a week. I get the bottle and there are ten pills inside for a month.
I did not ask for these. I felt like the pain had defeated me somehow. I’ve gone about 9 years without any. To me it’s huh, this sucks. To others’ it’s, yes finally; something you should have been taking for a long time now.
I take one pill and sleep for the majority of two days.
It’s great. Sleeping through an awful migraine is nice but I miss out on everything for two days but the chances of enhanced sensitivity are stronger now but I have to take medicine. Weird toss up.
I feel like I have to report to someone. “Hey, I’m taking a pain pill.” Or I wait until someone tells me to go take one. I don’t know when I have reached the threshold of go take the pain medicine. And then I write it down so that I don’t accidently take more than two that week. It is weird internal dialogue.
I believe the most important thing is that the pills brought relief to my caregivers. And we are thankful for the ability to be proactive instead of solely reactive to unbearable pain levels. Hopefully, we won’t have to go back to the ER for a long time.
Stories that inspire through real stories by real people facing real challenges. Having a disability or disease doesn’t have to be isolating. U.S. Pain Foundation partnered with The Mighty to allow pain warriors a safe platform to face their adversity with the pain community. Today’s challenge is to read one featured story from The Mighty and then SHARE it on social media.
“Why the World Shouldn’t View Acceptance of Our Illnesses as Giving Up”
By Selena Wilson
When you are having a high pain day, what have you found comforting?
- Music: It is proven to decrease pain, increase optimism, speed healing, decrease anxiety, improve mental health, lower heart beat, improve sleep habits, help relaxation, inspire creativity, and other stuff.
- My cave: dark, enclosed space, my bed, limited human interaction, safe place to cry and be in a bad mood, can stare out into space…
- Cuddling: Cuddling releases oxitocin. It reduced stress, relaxes muscles, and is a pain reducer. I cuddle with my teddy bears, pillow, blankets, and my fav was a boy when I had one.
- TV and movies: When I can stand the light I watch but I can’t see to read normally. House MD, Disney, Star Trek, crime shows, fairy tales, MASH 4077th…
A lot of high pain days I don’t even turn on my computer, hence why I’m behind. I can barely think, my balance is crazy, and my vision is all wonky. It takes a lot of my pain management tools out of the list.
Music stimulates the brain. Pleasing music releases endorphins that relieve pain. Music can also be a way to distract a person from pain. It gives a person something to concentrate on. I think music is a coping tool that is readily available and valuable.
Music therapists can use music in a variety of ways to help a patient battle pain. The therapists can help a person learn to cope and express their pain through creative expression or a more passive setting through discussion and meditation while listening. Thinking about taking music therapy on? Check this out (http://www.musictherapy.org/)
I use music as a coping mechanism everyday. A few years ago my Dad read that listening to music for half an hour helps pain patients fall asleep. Ever since I have been listening to music every night before I fall asleep. I’m listening my “soft” list right now, it mostly has ballads from boy bands that are in the lower tones and slower. Most of the song are in Korean. It gives me something to do during those episodes where listening to music is about all that I can handle. I can listen for words that I know the meaning to, pick out individual sentences, and focus on how words are pronounced.
A sound track I like listening to on bad pain days is the “Gu Family Book OST” Lee Sung Gi is one of my favorites for bad days.