Category Archives: awareness

US Pain Foundation: Art through pain

Submitting a piece of my art might be fun but I have no idea what I would submit.  If you would like to think about it, the information and the link to submit is below.

Dear pain warriors,
Each November, U.S. Pain Foundation organizes a month-long educational campaign for the pain community. Recognizing that art and writing can help kids and adults cope with and/or express chronic pain and its effects on their lives, this year’s KNOWvember campaign will focus on creativity.
During the month, titled “Art through Pain: How Creativity Helps Us Cope,” U.S. Pain will be:
If you’d like to submit your artwork, you have the option of sharing it with us privately or allowing us to use it in a future project (such as in a blog post on Remedy or an INvisible Project magazine) through the link below.

To submit got to

https://www.surveygizmo.com/s3/5287402/KNOWvemberart

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Mental Health is for Everyone

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Everyone fits on this scale somewhere everyday. It is important to take care of your mental health, just as much as our physical health. Some ways to care for mental health are:

  • Talking about your feelings.
  • Keep physically active.
  • Eat well.
  • Drink alcohol sensibly .
  • Keep in touch with family and friends.
  • Ask for help when overwhelmed by how we feel or things don’t go just right.
  • Take a break, de-stress, and take me time.
  • Take time to do hobbies and stuff your good at.
  • Accept who you are.
  • Care for others.

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I’m Schizophrenic.

I have a terrible migraine right now.

I have schizophrenia and I’m not dangerous.  

Schizophrenia has stigmas. In media schizophrenics are seen as dangerous people who are crazy and need locked up. It is true that people can be dangerous to others, but not all schizophrenics are dangerous. Schizophrenics experience symptoms that aren’t in themselves dangerous. A Schizophrenic is actually more likely to hurt themselves or commit suicide then hurt anyone.

Some more prevalent symptoms includes:

  • Delusions — having false, fixed beliefs, despite evidence to the contrary
  • Hallucinations, such as hearing voices or seeing things that aren’t there
  • Symptoms of depression, such as feeling empty, sad or worthless
  • Periods of manic mood or a sudden increase in energy with behavior that’s out of character
  • Impaired communication, such as only partially answering questions or giving answers that are completely unrelated
  • Impaired occupational, academic and social functioning
  • Problems with managing personal care, including cleanliness and physical appearance

I received an official diagnosis a few months ago. A lot has changed since symptoms started but with medication the symptoms are under control and I’m considered high functioning. I never put anyone in danger and was not a danger to myself. More specifically I suffer from Scizoaffectiv disorder depression type. So I suffer from all the symptoms above accept mania. Mine are religiously based, demons and angels and one that claims to be a god. I believed I was an exorcists and and the voices were actually demons, angels, and God speaking to me. I know now it is hallucinations and delusions. And I’m doing better with the other symptoms that I experienced as I did. With medication and therapy I’m dealing the best I can.

Medicine really is a gift from God.

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Mental Illness Awareness Week

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Tomorrow kicks off Mental Illness Awareness Week. The goal is to work towards ending the stigmas around being mentally ill and having mental disorders.

It is important for people to feel like its ok to seek treatment, just like if it were for diabetes. People choose not to get treatment because they do not want to be one of those people with a mental health issue. They think that whatever it is they are going through they should be able to handle it themselves on the down low to be a normal person. But it not true. Taking care of yourself should not be seen as something that makes you weak, unfit, or bad. Taking care of yourself is what you should do to lead a healthy life.

That is what its about. Spreading information and letting people know its okay to seek help.

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Epilepsy Awareness Day 26: Aftermath

Six Days and I haven’t completely recovered from my seizure. I am still sleeping most of the day because I simply

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can’t stay awake. I am so tired. My body is a little sore. My brain is worn out. My pain levels are back to normal. My thinking skills have improved greatly. The aftermath feels a lot like the aftermath of a full blown migraine but it takes a little longer to recuperate. I haven’t had a seizure in almost 5 years so I didn’t remember it taking this long to feel better or sleeping this much. It makes me feel old.

 

 

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Epilepsy Awareness Day 25: Counting the Days

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People count the days, months, years since their last seizure. A month, 6 months, 1 year, years are landmarks worthy of celebration and parties. Epilepsy warriors and heroes are praised by doctors, family, friends, and random people. Its weird how something you have no control over becomes an accomplishment. But when you break that streak its devastating, especially if you had passed landmarks. What you knew would happen eventually just turned everything upside down. Your right back to square one.

My count is four days. My count started over November 22, 2017.

I was seizure free for four years, eleven months, and two weeks. The middle of January would have been five years. I had gone to almost daily seizures to none. A huge accomplishment. Uni and I would have had a feast, celebrated. Five years is a landmark. The accomplishment was gone in less then a minute.

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Epilepsy Awareness Day 13: Epilepsy Kills

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An epileptics die from seizures and seizure related causes. It doesn’t matter what kind a person has or how it presents, it can be deadly. Brain damage, heart attack, an injury, and crappy timing can all result in death. And Unexpected Epileptic Death Syndrome is where a person can die after a seizure for no other apparent factors. An epileptic does not just worry because a seizure is around the corner, its because that seizure can kill.

I would be somewhere and wake up somewhere else a few times a week when I first presented. One day I had a neurology appointment and was waiting for my ride. He called and I was walking out of my dorm. The next moment there was a loud car horn and he was pulling me out from the middle of the road. I had wandered into the middle of a busy street and was almost hit by a car. I had lost about ten minutes. I don’t remember the walk to the parking lot, but my friend noticed I was quiet and was stumbling but didn’t think much of it.  When he stopped yelling and realized what had happened he was scared and blamed himself.

Every time I wake up to a story or the realization that I almost died or could have died it is frightening. But it’s not something that I can dwell on. I’ve been blessed that I haven’t experienced any serious injuries and have narrowly dodged grave peril several times. All that can be done is to hope and pray we are just as lucky next time.

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Epilepsy Awareness Day 10: Epileptic Dancing

Your Favorite Martian Techno’s “Epileptic Techno” is awfully prejudice, hurtful, and harmful. I cannot post the video. If you are light sensitive do not go find it on YouTube.  I accidentally clicked the link and then felt like I was dying. I read the lyrics and comments and was amazed. Lyrics

I have never seen a dance move that looks like an seizure. I watch a lot of music videos. One person chimed in to express how the video was not offensive, it is a joke about dancing and seizures. This begs a few questions. Is a video that purposely adds triggers offensive? Is a video that uses a cartoon character having a seizure as comedy offensive? Is the equating dancing oddly and having a seizure offensive? Yes, those are all offensive. They should not be normalized. If you want to tell a joke at my expense that is your right. Do not tell me its not offensive. It is my right to be offended. And if you got to say “I ain’t trying to disrespect epileptics,” your disrespecting somebody.  If it isn’t an epileptic then maybe someone with turrets syndrome.

The song is alright, its my genre. The chorus is catchy and it has a funny cast of characters. There were a few epileptics in the comments who really enjoy it. A few who had seizures. There was one line I liked:

I felt my muscles expand and contract
I passed out on the dance floor laying on my back
Reality started fading, cutting in and out

It is the one moment I can relate to. Its the last moment of consciousnesses, the floor, and the first moments of regaining consciousness.

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Epilepsy Awareness Day9: Seizure Boy

Go see the comments

True Story. This is a good description.
Lyrics

Go check out how his song sparked a conversation about epilepsy.

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Epilepsy Awareness Day 8: The Fall

My relationship with the floor is the only thing that I know won’t change with time. Like an old friend, our relationship won’t fade. When I fall, the floor will catch me.

When I was a drama student I had to learn to fall. Stretch, relax, breath, and now fall. Up and do it again. And again. And again. Until it doesn’t hurt. There is an art to falling. The key is to commit. Commit: do not to try to catch yourself. The floor will catch you. Now you can learn to direct your fall. Fall safely, the floor will catch you. After you’ve learned how to fall you put the fall into the lines. And the stage floor will catch you.

After I learned how to fall I put it into practice. If I started to fall I just fell. I was less likely to get injured if I committed to the fall. When my body changed I lost the ability to fall safely. I don’t have the control over my muscles, I can’t make them relax. But, the floor is still there to catch me.

I knew I had a solid bond with the floor a few weeks after I started having pretty regular seizures. I woke on the floor. I knew I had just had a seizure by the looks on peoples faces. I said, “hello floor.” I couldn’t ask “why am I here?” I knew. I couldn’t ask “where am I?” I could tell by looking around. Then I looked at the scared faces and said “I’m alright.” The floor was there to catch me.

The floor is always there to catch me.
The floor is always there to welcome me back.

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